A network to share best practices for children with special needs
When I founded MERLD World a couple years ago, I started the original blog in order to help families lead better, less worrisome lives with mixed expressive receptive language disorder. I had no idea that it would blossom into a teacher site, a facebook page and MERLD World support group and more. MERLD isn't really that new any more, but for those of you who don't know what it is, here's my first blog post dated March 2010. It will give you some insight.
Two of my children have mixed expressive/receptive learning disorder (MERLD). What is MERLD? Why is so little written about it?
My children are not autistic. Many children with MERLD, which is a communication disorder, are prematurely placed on the autism spectrum because many of the symptoms, for lack of a better word, are similar: echolalia, behavioral problems, repetitive behavior or stimming.
My son was diagnosed at age four with moderate to severe MERLD by a hospital speech therapist. My daughter was three and diagnosed with mild to moderate MERLD through her preK speech therapist. Both are very social, chatty kids. But, as my now seven-year-old son puts it, “My brain doesn’t always work right.” Both children are average to above average intelligence, as a great many kids with MERLD are, but many tasks they cannot complete at school without hands-on assistance, especially math and reading. Both children, through intervention, are learning to communicate on their grade levels.
Think of MERLD as an “aphasia” of the brain. The kids hear what you are telling them, but somewhere between hearing and understanding the words, things get jumbled up…the wires get crossed. It’s like learning a new language. You can hear someone speak it, but you “get” only some of the words and quite often respond through context or whatever you can “pull out” of the conversation. It’s also like a stroke victim who must relearn how to speak. The words go in, it takes a while to assimilate them, and then to find the “right” words to express what the person wants to say.
This blog and the book in progress will focus on living with MERLD. The activities of daily living. For example: How do you speak to a child with MERLD? Normally. If your child uses a different word than an “accepted” word in a response or jumbles up sentences, correct him.
Child: A carrot rabbit fast runs.
Immediately say: A rabbit runs fast. He likes carrots, doesn’t he?
And then go on. Your child will catch on and catch up. Consistency is the key to learning.
I welcome all comments and am gathering testimonials to use in my book which will include expert commentary from speech language professionals.
Find MERLD World on Facebook.
merldworld.com (original blog)