A network to share best practices for children with special needs
We put so many tools in place (e.g. storage bins/containers), time lines to follow, and schedules all in the name of organization. There are so many positives to
being organized for a child with disabilities. They know what to expect and have some foresight into what is required or asked of them. There is a sense of understanding and expectation and, therefore, in some ways it may decrease stress. In addition, productivity on the part of the child may be consistent or show improvement. But what happens when things don't go as planned? Are your kids flexible or are we teaching them not to be flexible because of the structure we have put in place? Because life does not go as planned, we all need some flexibility, but it makes me wonder if this is something that can be taught? What do you think? Comment
Comment by Jill Couri on August 30, 2011 at 12:28am I think we bring about stress by not teaching flexibility. Granted, our students with special needs need to know what is happening throughout the day, but without change to their routines, it is difficult to experience the "real world". Sometimes, we over-structure and they don't learn to think and cope for themselves. They see our stress when we aren't flexible.
Comment by Catherine Milian on August 9, 2011 at 5:51pm Hey Tobi
I can tell you right now having a 13 year old on the spectrum. Not only does he know his routine but he almost has an OCD with it. Now what right? How did we learn to become flexible? We had to cope with the anxiety of not having the predictable. So throwing a curve ball once in a while is ideal because they need to grow and learn from it. Maybe fire drills everyday is not the best remedy but figuring out what kind of stressful stimulant they can manage that day is great. The parents will know what makes their kid tick. Which can give you good ideas what to introduce. That way we dont worry so much about the behavior but teach them coping skills to deal with the maddness this world will throw at them as they age. As for my son at 13, I have managed to give him options and explain what are good choices vs bad ones.
Can we teach flexibility without losing our trusted schedules for our kids? I am not sure but I am definitely trying. Sometimes, we use something called the "Parking Lot" in our home. This is just a sheet of paper with a picture of a car on it. We stick it on the wall at the kids' eye level and make sure that a pen or marker is nearby. Whenever, something happens and a child wants something that requires holding off on it because it isn't time for it or the situation, especially if it is unexpected, does not allow for it, we can jot it down in our Parking Lot. It is validating for the kids to post their wants on the wall. This is a promise to revisit the request at another time and sometimes, that is enough for them.
Additionally, I say the same phrase whenever I want them to be flexible with new things and/or situations. "It is good to try new things," I say and I never change the wording. Because the wording is constant, it is familiar to them which is great because the situation that is requiring their flexibility is unfamiliar and therefore yucky or scary or who knows what.
I also try to name the times when they are flexible without being asked. That is always good to do. I only wish I could remember to do that more often. That is quite possibly the biggest challenge of all.
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